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This organization is a 501(c)3 tax-exempt organization, and your donation is tax deductible within the guidelines of U.S. law.

✨ Help us reach our year-end goal. You can fill critical gaps in desmoid tumor research.

Your dollars create real impact.


At the Desmoid Tumor Research Foundation (DTRF), we've made remarkable strides in accelerating research and educating the desmoid tumor community.
But critical research questions remain unanswered.

As 2026 comes to a close, we're calling on YOU to help Fill the Gap with us.

Your donation funds innovative research, strengthens scientific collaborations, and expands access to trusted educational resources for patients and caregivers around the world.

Every gift helps close the distance between unanswered questions and meaningful discoveries, bringing us closer to better treatment options and ultimately, a cure for desmoid tumors.

The research progress we make in the future depends on
the collective action we take TODAY.

SUPPORT THE DTRF

Watch Jason's story.

For the past eight years, Jason, a desmoid tumor patient and DTRF Board Member, has been "Filling the Gap" by hosting an annual golf event to support the DTRF's mission.

Listen to this short message to learn more about how your donation can accelerate desmoid tumor research for years to come.

Why give to the DTRF?

Hear directly from patients and caregivers about why they give to the DTRF and how your generosity helps Fill the Gap between unanswered questions and meaningful progress.

Watch their powerful message, hear why they give, and be inspired to make an impact of your own!

Advocate and raise awareness with us.

Your dollars strengthen our advocacy and awareness efforts for desmoid tumor patients and caregivers around the world.
 
Donate

Educate the desmoid community.

Your donation expands our virtual and in-person events ensuring patients and caregivers have access to leading desmoid experts.
 
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Accelerate research in the future.

Your gift fuels promising research, strengthens global collaborations, and drives new discoveries in desmoid tumor science.
 
Donate

Share Morgan's message.

There’s a gap that only you can fill.

A gap between a patient and a diagnosis.
Between a researcher and a breakthrough.
Between living with uncertainty and living with options.

Desmoid tumors are rare, but the needs are very real every single day.

Most patients face misdiagnosis, limited treatments, and few doctors who understand what they're going through.

This is where you come in.

FILL THE GAP TODAY
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Desmoid Tumor Research Foundation
121 S. Broad Street, 15th Floor
Philadelphia, PA 19107
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